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 Their life is spent in and out of hospitals for wound treatment, blood transfusions, biopsies and surgeries. Often, their eyes blister, leaving them blind for days. Chronic anemia reduces energy and growth is retarded. There is little hope for life beyond 30 years. How can you help? Proudly and loudly wear these celebrity designs to help generate support for EBMRF’s tireless fight. For more information, visit www.ebkids.org.
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EBMRF is a non-profit organization devoted to finding the cure for
Epidermolysis Bullosa (EB). Through special events, projects and the
media, our goal is to raise awareness and funds in order to give
researchers the means to further study, effectively treat, and
ultimately cure this devastating skin disorder. What is Epidermolysis Bullosa (EB)? EB is a family of inherited diseases characterized by the formation of blisters after minor trauma to the skin. Ranging from mild to life-threatening in severity, the disorder affects all ethnic and racial groups and both sexes. It is estimated that as many as 100,000 Americans suffer from some form of EB. Imagine a person with painful wounds (similar to burns) covering up to 75 percent of their body. This person's diet consists of liquid and soft foods because blistering and scarring occur in the mouth and esophagus. Scarring also causes their fingers and toes to fuse. <RETURN TO JUBILEE |